Celiac disease is massively under diagnosed in US, Australia & UK. Do you need gluten free too?

"bottom-link">was 470,000 searches. With 79% internet usage
and 65% Google share, this converts to an
The US has one of the worst diagnosis rates ofestimated 911,000 searches per month. If there
developed countries. Gluten Free Foods are madeare only 35,000 diagnosed celiacs (20% of total
for people who are celiac or gluten intolerant.celiacs) in Australia this would mean that they
Because symptoms are so diverse this diseaseperform 26 searches each per month each!
often goes undetected and undiagnosed byAs the 1 in 100 statistic takes into account celiac
Doctors. But first you may be interested in whatbabies, the elderly and people who do not use the
the odds are that you may have the disease andinternet (but have access) the number of celiacs
not know it. Or why it took so long for you to beactually searching is less than those diagnosed. So
diagnosed.  Level of undiagnosed "Celiac Disease"the ones that actually search perform an even
people in Americahigher search than the average estimated. But 26
One references estimates that "1 in 133 people insearches per month (or higher) by celiacs is most
the US have celiac disease" It also cites a studylikely unrealistically high. It is more likely that this
that was conducted to "assess the number ofnumber is reduced by the searches performed by
undiagnosed cases of celiac disease due to a lackgluten free businesses and gluten intolerant people.
of awareness and inadequate training amongAt the Melbourne gluten free shown in October
primary care physicians. Researchers found that2008 approximately 10,000 people attended over
when doctors tested all of their patients withthree days. Yet from the above estimates, only
symptoms associated with celiac disease theabout 8,000 people in Melbourne are diagnosed
diagnostic rate increases 32- to 43-fold" (ref 6).celiacs. Empirically (from our stand at the show) it
"The projected number of people in the Unitedis likely that family members without CD and
States with celiac disease could be as high as‘gluten intolerant' people may have made up to
three million, yet only a small fraction of these80% of the visitors to the show. If this is the
cases has been correctly diagnosed and treated".case, then the number of diagnosed celiac people
(ref 6)online searches each month should be reduced by
Another article written in 2004 suggests that theabout 80% to account for gluten intolerant people
average time from symptoms to diagnosis inand business searches. This reduces diagnosed
America was ten years. It cites variances in theceliac to 26 x 20% = 5.2 searches per month.
number of celiacs (diagnosed and undiagnosed) inUsing Google data estimates the Australian
difference countries - Italy celiac disease isadjusted celiac searches per month at 4.2
suggested to be as 1 in 250 people, while Irelandsearchers per month. When the e-demand of
only 1 in 300 people. However it is "estimated thatvarious countries is compared to a country's 'GDP
only one in 4,700 people in America are actuallyper person' a logarithmic relationship exists
diagnosed with celiac disease. Yet according tobetween demand and wealth. Higher wealth also
evidence researched by the NIH report,most likely being associated with higher diagnosis.
prevalence may be as high as 1 in 105 people!"(refUK level of un-diagnosed Celiac disease
7). This would suggest that five years ago thatIn the GFP Global Matrix article, The UK was
only 2.2% of celiacs were diagnosed in America.estimated to have a celiac search value of 2.2
This lower level of diagnosis could be the reasonsearches per celiac per month, which while lower
that in a previous articles on the gluten freethan America and Australia is still well ahead of
pages site estimated adjusted celiac searches inGermany (0.3), France (0.8) and Italy (0.9).
America at 2.7 searches per celiac per month -One reference estimates that "at least 1 in 100
much less than Australia's value of 4.2.people in the UK suffers from celiac disease.
Level of Diagnosis in AustraliaHowever, only 12.5% of people with the disease
In Australia the celiac society states that 1% ofare actually being correctly diagnosed. Recent
the population has celiac disease. Although theyresearch showed that the average length of time
suggest that only 20% of these people havetaken for someone to be diagnosed with celiac
been diagnosed. (ref 1). The Australiandisease from the onset of their symptoms is 13
Gastroenterology institute states that in Australiayears. (ref 8)
the diagnosis level is somewhere between one inAll of these facts suggest a massive global
500 to one in 2000 people (ref 4). Taking theunder-diagnosis of celiac disease. Other original
higher level of 20% diagnosis, this means that inarticles on this site suggest that the long term
Australia (population 21,550,000, Jan 2009) thatsymptoms of this disease greatly distroy the
215,000 people are most likely celiac but 170,000quality of life for those who acquire it. Fast and
people don't know it. Note that gluten intolerantaccurate diagnosis is critical, and if you suspect
people may increase the amount of peoplethat you suffer from some of the symptoms,
seeking Gluten Free solutions by a factor of threediagnosing or ruling out the disease is vital. Please
or four times the Total Celiac values.see our article on Symptoms and our article on
In December 2008, the top 200 search terms onDiagnosis options if you believe you may need
Google Australia, related to gluten free productshelp.