Experts Say Celiac Disease is More Common Than You Think - Here's What to Do If You Have It

When Survivor contestant turned talk-show hostDelayed growth or onset of puberty
Elisabeth Hasselbeck went public about herFailure to thrive (in infants)
diagnosis of celiac disease and her subsequentMissed menstrual periods
gluten-free diet, it did a lot to raise awareness ofInfertility (male and female)
the disease - one that experts estimate affectsSpontaneous miscarriages
one in 100 people.Canker sores inside the mouth
But in raising awareness, Hasselbeck may haveTooth discoloration or loss of enamel
inadvertently given some people the wrongDiagnosis dilemma
impression: that eliminating gluten from your diet isIf celiac disease is so widespread, why aren't
a sure-fire key to weight loss.more people diagnosed with it? It's for a number
A gluten-free diet isn't a guaranteed way to loseof different reasons. One is that physicians were
weight. A lot of people on a gluten-free diettaught that celiac disease was rare and only in
actually gain weight. Many gluten-free productschildren. That meant when a patient came in
contain more fat and sugar than other items, shedisplaying a number of symptoms of celiac
adds, so going gluten free without a diagnosis ofdisease, it did not automatically jump to the
celiac disease is not a recommended method forforefront as a possible condition.
weight loss.The other problem is that tests to diagnose it are
There are also other myths and misconceptionsstill imperfect. Often, the first test is a blood test,
about celiac disease. Many still believe it's a rarewhich only detects the more extreme cases of it
condition that only children can get. Here's theand not those with less damage to the small
straight truth about it.intestines. It is also possible to get a false
What is celiac disease?negative response with a blood test.
Celiac disease is an inherited digestive disorderThe second test is a gastrointestinal biopsy, which
where specific proteins found in wheat, barley andis a much more definitive diagnosis. However,
rye (known as gluten) damage a person's smalleven that is imperfect. If the test doesn't take
intestine so they cannot properly absorb theenough samples of the intestines (at least four to
nutrients in the food they eat.six samples), you could end up with a false
Medical experts used to believe it was very rare,negative result. It is estimated that 20 percent of
affecting approximately one in 10,000 people andthese biopsies are done incorrectly.
mostly occurring in young children. That's beenFinally, for the test to be accurate, the person
proven false in recent years, says Case, and it'smust still be consuming gluten. If someone has
now estimated that one in 100 have celiac diseasegone on a pre-emptive gluten-free diet, the tests
and, what's worse, only five to 10 per cent ofresults could come back negative.
those are actually diagnosed with it.If you suspect celiac disease
It can also occur in anyone, at any age. It can beIf you suspect you might have celiac disease, do
triggered by a viral or gastrointestinal infection,NOT stop eating gluten. Celiac disease is not
pregnancy, severe stress or surgery.something you should ever self-diagnose. If you
If left untreated, celiac disease can causesuspect you have it, go to your doctor and ask
nutritional deficiencies and increase the risk ofto be tested.
osteoporosis, intestinal cancers, neurologicalRemember that the tests are imperfect. If at
disorders, infertility, as well as possiblefirst you get a negative result but you still
development of other autoimmune disorders. Itsuspect it, try to find a health care practitioner
has also been known to occur in combination withwho is familiar with the condition to ensure you
Type I diabetes, auto-immune thyroid disease,get the most accurate test possible.
autoimmune hepatitis, Down's syndrome andAnd if the tests still come back negative, you
Turner syndrome.may have something known as non-celiac gluten
What are the symptoms of celiac disease? Theresensitivity. That means you still need to avoid
are many, and they can vary widely fromgluten, but it will not damage your intestines in the
individual to individual. They include:same way as someone with celiac disease. It's
Recurring bloating, gas, or abdominal painimportant to know if it's celiac or not because if
Chronic diarrhea or constipation or bothsomeone with celiac doesn't follow the diet
Unexplained weight loss or weight gainexactly, he or she is at a very high risk of
Pale, foul-smelling stooldeveloping complications and other serious
Unexplained anemiadiseases.
Bone or joint painFinally, if you are diagnosed with celiac, see a
Behavior changes/depression/irritabilitydietitian to help you create a gluten-free eating
Vitamin K Deficiencyplan.
Fatigue, weakness or lack of energy